Contented Dementia? I don’t think so

Posted by RDN under Mind and body / Politics and campaigns on 19 October 2009

Oliver James has written some silly and poorly-argued books and it would have been nice if Contented Dementia, his new offering, was an exception. It isn’t.

Dr Jame’s new thesis is, as he proudly acknowledges, someone else’s. His mother-in-law, Penelope Garner, is the inventor of the methods it describes. The thesis is that all patients with dementia can be made pretty happy provided they are not challenged about anything very much and especially about the recent past and their view of it. The trick is never to ask them questions but instead to find trigger themes from their past about which they can be confident, and thus indulged and comforted.

I happen to spend an inordinate amount of time with two individuals over 90 and niether of them has Alzheimer’s (so far as I know). They may have a touch of dementia. Frankly, I wouldn’t know. They are both in different and varying ways not altogether with-it, though both are capable of being very sharp, and very seldom politically-correct. Still, I recognise the soundness of some of Dr James’s case in that there is not always much point in asking very old people questions. “What would you like for supper?” is quite likely to be met with a blank stare and a vaguely anxious look, as though one was Bruce Forsyth asking a quiz question about the conveyor belt on The Generation Game. But I find asking questions often seems to stir up batty old people and helps them wake up and get with the programme and rediscover the means of enjoying their present. Without lively interrogation and challenge, they seem to sink into gloom.

OK, you say, but those old people haven’t got Alzheimer’s and maybe not dementia – they’re just a bit do-lally - so what would you know?

I know enough to be suspicious of James. It seems dubious to lump dementias and Alzheimers together as though they were like each other. I think he is wrong to reach for a simple mechanism and insist that it works for all patients with whatever degree of illness. I know he is horribly and probably incurably immodest, though his own accounts of the lessons Penny Garner has learned from other practitioners (page 14, page 20) suggest that their technique is not a fresh discovery, but rather a radical version of what plenty of other carers have found out for themselves. I doubt all questions are toxic, as he asserts. I doubt all patients need to be indulged in lies as much as he supposes. 

Oliver James fails one crucial test of my own devising: the Cuckoo Metre. It comes from my irritation at the Laingian nonsense popularised by One Flew Over the Cuckoo’s Nest. Here I am in full flow

“These sins include saying the well have much to learn from the unwell; that it’s the unwell who are sane, really; and that institutions never really understand their inmates.”

Contented Dementia is full of statements such as:

“With Dorothy’s [a sufferer's] help, Penny was beginning to get the hang of what dementia was like.”

What he might reasonable say, in this and several other cases like it, is that Penny was working out what her patients needed, and doing it by working with them. But they weren’t teaching her, and weren’t the experts in their condition, and it is specious to say otherwise. And of course the USP of his book is that he and Penny are super-right and everyone else has got it pretty wrong.

So this is a poor book because it wildly over-reaches itself. When I wondered whether I had anything like the expertise to opine on it, I at first comforted myself that its failing were open to logical as opposed to merely medical challenge. And then I googled the title and found that the Alzheimer Society dislikes the book in much the same terms as I do. What I merely suspect or can deduce, they assert from experience.

5 comments

  • Written by L White on 09/09/11 at 12:44 pm:

    Whilst I appreciate your argument, I feel you are missing the point. Anyone who reads the book thinking that the activities sound easy or that the results will be easily applied are rather misguided. Nowhere in the book does James state that dealing with dementia is an easy task, moreover, it highlights the fact that managing someone with dementia is time consuming and wearisome. I read the book and the anecdotal nature allowed me to better understand what it would be like to have short term memory loss and appreciate why individuals with dementia act the way they do. He has turned what may be described as a dry medical subject into something with an actual application.

  • Written by Dr. Margo Karsten on 01/01/12 at 8:46 pm:

    Mr. North, I strongly disagee with your statements. I have researched “SPECAL” care and found empirical studies which demonstrate the effectiveness of this approach. I have also implemented the concepts into my own mother’s care, and it has had a significantly positive impact on her overall wellbeing. I commend both Oliver and Penny for spending over 20 years evalutating the effectiveness of SPECAL and now publishing their insights for all of us to benefit from! It is one of the most positive books written about dementia, and I recommend it to everyone I meet!

  • Written by paul filsell on 09/01/12 at 2:34 pm:

    I have had over thirty years of looking after people with dementia and this book highlights what I have known and practised for many years.
    It should be compulsory learning for everyone involved in this type of care.

  • Written by Sylvie Clayden on 01/02/12 at 12:28 pm:

    Hello. I am an Occupational Therapist whose community work in ” Health ” has driven me to want to specialise in Dementia, find a platform and a voice for these people. I am another advocate of Penny Garner`s approach and am disappointed that the Alzheimers` Society reject it. I feel they hold too much power and would like them to change their name to The Dementia Society as they support all forms of dementia. Anything positive and proactive for this group of people gets my support – we must stop patronising them and medicalising them – acceptance is all and engaging in the SPECAL sense way is positive.
    The tone of your article is angry, why is this ?

    Best Wishes

    Sylvie Clayden

  • Written by RDN on 01/02/12 at 1:37 pm:

    Dear S,

    Thanks for that.

    To deal with the “angry” point first. I hope it isn’t true, but if I was sparky then that is because I have for many years been at loggerheads with much of Oliver James’s “Britain on the Couch” and “Affluenza” material. In particular, I haven’t liked his handling of evidence nor his egotistical tirumphalism (if I may be so sparky as to call it that).

    Coming to the “Contented Dementia” material, I wanted to point out that many elements of his case are sound and have been known to be so for several or many years (as I know not least from his book). So I think the risk of the OJ writing is that it renders universally applicable what needs to be selectively considered and it suggests an embattled, visionary status for his campaign which would be better framed as a candidate for being useful rather than as a unique bastion of truth in a bad world.

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